Coping and support

Having a child with Prader-Willi syndrome is challenging and can take a lot of patience. Managing eating problems, behavior and medical issues can impact the whole family.

Some options for coping and support can include:

• Talking to a mental health professional. If you're having trouble coping or feel overwhelmed, talk to a mental health counselor or therapist.
• Joining a support group. Some people find it helpful to talk with others who share similar experiences. Ask your health care provider about family support groups in your area. Organizations such as the Prader-Willi Syndrome Association provide resources, support groups and educational materials.
• Seeking other sources of support. Options for additional support can include asking about sources of respite care, asking for support from family and friends, and taking time for your own interests and activities.